I’d love to hear a follow up on this one. My d got bitten at a camp in NY…she’s got far worse symptoms than these, and we are foreclosing bec of Lyme disease, Mycoplasma, and co-infections. My daughter has encephalopathy in the brain from lyme, has lost her whole life to this disease, and it’s not the camp that needs to be sued, it’s the IDSA and CDC for faulty guidelines that prevents people from being properly diagnosed. Even if the camp sent the girl to a dr, nothing would have shown up at that point. Antibodies aren’t produced for at least a month, and by that time, you have lyme for life. Over 70% of lyme patients are misdiagnosed by commercial and hospital labs and go untreated for years. I’ve written six appeals to our insurance company and was denied each and every time by ID drs who are absolutely ignorant about this disease. I had 487 pages of tests with imaging studies proving encephalopathy in all the lobes of the brain; blood work confirming it, blood culture tests, panels that showed autoimmune disease from the infection in the brain….and these idiots still denied it. If I knew who the ID dr was, I’d report him. The same with neurologists who follow the IDSA guidelines….The insurance co drs hire their shills who spend no more than a day, if that, reviewing cases. There was no way someone could throw my daughter’s appeal and have an answer by the end of the week. Our AG’s office said as soon as the insurance companies see Lyme disease and any of the flagged lyme dr’s, they just deny it. They don’t read a thing. I was able to get another appeal simply bec the moronic ID dr never commented on the biggest piece of evidence – a brain infection and severe hypoperfusion and hypometabolism. Frightening that this person even practices! Had no clue what molecular mimicry was and his/her specialty was “molecular medicine with a degree in microbiology!!!!” I’m hoping the news media will expose them all soon… There are millions of people worldwide with lyme disease, there are Gulf War veterans with Lyme, co’s and mycoplasma, because they all got the bogus lyme vaccine. The ID dr that wrote the paper about it for the Dearborn Conference lied and doctored the information. Due to the Freedom of Information Act, people were able to get the emails he sent to the house appropriations committee…these are serious crimes, and yet the DOJ hasn’t prosecuted him yet…. It’s a pandemic much worse than HIV/AIDS, and gets a miniscule amount of funding. However, the DOD asked for monies to allot to the VETS with Lyme, and some of the funding will spill over to research, education and finding a cure. Right now there is none….Senators Blumenthal (CT) and Schumer (NY) have signed the bill for funds for education and research, and Rep Chris Smith (NY) has gotten a bill passed last September calling for more funds for lyme disease…HR-4701..it’s now heading to the Senate…..Everyone wants to file a lawsuit, and the only one that has been successful to date has been in New Mexico where a patient sued the insurance company and won. However, it hasn’t reached the federal level so it can set precedence for everyone else….This disease is insidious and sucks the life out of families physically, emotionally and financially. I am foreclosing in the next few months because I chose meds over mortgage…I’d live in a box to get my daughter well – she’s 20 yrs old and got her first tick bite when she was four and then got another one when she was 14…it’s rampant…AND sexually transmitted and passed in utero….so who knows what the real stats are because there are so many patients who don’t know they have lyme or being misdiagnosed with other diseases……
We have updated our privacy policy to be more clear and meet the new requirements of the GDPR. By continuing to use our site, you accept our revised Privacy Policy.
I’d be interested to see what she took to camp in the 1st place. Did she bring tick-protective clothing…long-sleeve shirts, long pants, socks?
Doubtful, more likely too short shorts, tanks/halters, flip-flops, etc.
I’d love to hear a follow up on this one. My d got bitten at a camp in NY…she’s got far worse symptoms than these, and we are foreclosing bec of Lyme disease, Mycoplasma, and co-infections. My daughter has encephalopathy in the brain from lyme, has lost her whole life to this disease, and it’s not the camp that needs to be sued, it’s the IDSA and CDC for faulty guidelines that prevents people from being properly diagnosed. Even if the camp sent the girl to a dr, nothing would have shown up at that point. Antibodies aren’t produced for at least a month, and by that time, you have lyme for life. Over 70% of lyme patients are misdiagnosed by commercial and hospital labs and go untreated for years. I’ve written six appeals to our insurance company and was denied each and every time by ID drs who are absolutely ignorant about this disease. I had 487 pages of tests with imaging studies proving encephalopathy in all the lobes of the brain; blood work confirming it, blood culture tests, panels that showed autoimmune disease from the infection in the brain….and these idiots still denied it. If I knew who the ID dr was, I’d report him. The same with neurologists who follow the IDSA guidelines….The insurance co drs hire their shills who spend no more than a day, if that, reviewing cases. There was no way someone could throw my daughter’s appeal and have an answer by the end of the week. Our AG’s office said as soon as the insurance companies see Lyme disease and any of the flagged lyme dr’s, they just deny it. They don’t read a thing. I was able to get another appeal simply bec the moronic ID dr never commented on the biggest piece of evidence – a brain infection and severe hypoperfusion and hypometabolism. Frightening that this person even practices! Had no clue what molecular mimicry was and his/her specialty was “molecular medicine with a degree in microbiology!!!!” I’m hoping the news media will expose them all soon… There are millions of people worldwide with lyme disease, there are Gulf War veterans with Lyme, co’s and mycoplasma, because they all got the bogus lyme vaccine. The ID dr that wrote the paper about it for the Dearborn Conference lied and doctored the information. Due to the Freedom of Information Act, people were able to get the emails he sent to the house appropriations committee…these are serious crimes, and yet the DOJ hasn’t prosecuted him yet…. It’s a pandemic much worse than HIV/AIDS, and gets a miniscule amount of funding. However, the DOD asked for monies to allot to the VETS with Lyme, and some of the funding will spill over to research, education and finding a cure. Right now there is none….Senators Blumenthal (CT) and Schumer (NY) have signed the bill for funds for education and research, and Rep Chris Smith (NY) has gotten a bill passed last September calling for more funds for lyme disease…HR-4701..it’s now heading to the Senate…..Everyone wants to file a lawsuit, and the only one that has been successful to date has been in New Mexico where a patient sued the insurance company and won. However, it hasn’t reached the federal level so it can set precedence for everyone else….This disease is insidious and sucks the life out of families physically, emotionally and financially. I am foreclosing in the next few months because I chose meds over mortgage…I’d live in a box to get my daughter well – she’s 20 yrs old and got her first tick bite when she was four and then got another one when she was 14…it’s rampant…AND sexually transmitted and passed in utero….so who knows what the real stats are because there are so many patients who don’t know they have lyme or being misdiagnosed with other diseases……